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  • Confused

    I'm a cancer survivor and was checking out the video on the website intro page. In the video several people are saying that dormant and malignant tumors are "just as bad". I don't understand how this is true as malignant tumors are clearly much more dangerous and are more often fatal then dormant tumors.
  • DCA

    Taking any drug that is not approved by his doctor and is not FDA approved is very dangerous. There have been some phase I trials done on DCA, not sure if they have gone past that point. Basically phase I only decides whether it would be safe for human consumption and they used very low doses. There are side effects and death was reported. I would not advise slipping drugs into your husbands smoothies, as much as you love him and want him to live a long life, doing reckless things like this could have very adverse effects. Please, take his doctor's advice, do not give this to him. He is right, you do not know what is actually in that pill bottle and giving him anything outside of a doctor's recommendation could be very harmful. Even taking herbal supplements which seem harmless, while going through chemo and other treatments is not advised without the doctor's ok because of the fact that even something grown from the earth can have very bad reactions to other medications one is taking. 
  • medicine question

    I was prescribed dilaudid (an opiate) first about 4 years ago to help manage my lung and back pain related to my cancer. I have 2mg tabs with a prescription saying to take "1-2 every 4 hours as needed", although once I had been taking then awhile my doc did say I could take 3-4 on occasion if I had particularly bad pain. In actuality I take 1-2 so I can fall asleep at night and usually wake in the middle of the night needing another to go back to sleep. During the day I take Tylenol (my stomach can't handle the ibuprofen anymore) except on the occasion I have a lot of pain then I will take a dilaudid. I definitely have developed some tolerance - when I first took dilaudid it put me to sleep and if I had to get up to go to the bathroom I was dizzy a bit and had to walk with a hand on the wall... this didn't last long though and now taking one doesn't make me feel different except to take the edge off my pain. I have been careful to take the bare minimum needed to sleep and be reasonably comfortable with the idea it will slow down any tolerance building hopefully. After 4 years though the dilaudid still works, I had to take a bit more for awhile after my brain surgery but now I'm back to 2-3 a night.

    My advice is to come up with a plan to manage your pain with your doc that you feel comfortable with. For example I don't typically take dilaudid during the day because I want to be more alert and do things like drive. Staying on top of pain management can be a huge life quality issue though, it's important to be able to sleep and I think keeping pain at a tolerable level makes life much better! I tried to tough the chronic pain out at first it was miserable and a terrible idea for me at least lol.
  • Introducing Myself!

    Im john pappas, i just joined, im a survivor of hodgkins lymphoma, im almost three years out since finishing chemo, i still deal with chemo brain and post chemo anxiety and also since i finished treatment a tremendous lack of friends
  • Understanding PET scan results that lit up but maybe not enough to say it's back yet?

    It's definitely tough when scans or the next step isn't clear, I have had my share of scans where the doc told me to wait and see... then next scan things grow and was back to treatment for me! Wish you the best.