So my husband and I have been together since high school 16 years now. I've always been a stay at home mom since our daughter was born 8 years ago. Ben has been the sole provider for our family as a diesel mechanic. As of Aug 7th 2010...he now has brain cancer and I'm his wife and caregiver. He's been through surgery, seizures, millions of Dr. appt...which I now have to drive him to everytime, 30 radiation treatments. Our plans went from what we wanted to do and be to we hope Ben lives and now it's all about meds and Dr. appts and MRIs. So we have good days and bad days. I've done things that I never imagined I could handle. As of now 4 months along on this journey...he's just between MRIs basically, seizure meds working most of the time. He is in the bedroom 95% of the day he is tired a lot but depressed. I'm not sure what else I can do...I'm trying it all to cheer him up or to help him in anyway I can. We both are feeling the loss of independence. He wants to drive, not sure he misses working though, but money was nice. We've gotten bills differed and every single state ran assistance. We don't count on it to last and we are waiting to hear from SSD and hope that will help us pay our bills. For now anyway. I'm 31 and uneducated so yeah if I have to go to work to take care of us, just another thing to worry about.
Sorry so long! lol Having our 8 year old daughter go through this is yet another story all together. It's very difficult. She has seen and heard her dad having bad seizures and going off in an ambulance...she's anxious all the time even at school.
I'd love to connect to other wives going through this!