Hi there. I'm still confused about how excited I am that I found this website. I've actually been in a weird denial/acceptance mode since all this started. Because, despite all the symptoms, I had no inkling to expect this.
I'd never needed a "normal" doctor before in my life, I've always been amazingly healthy, active, and happy. But my headaches and other symptoms where getting ridiculous by the time the semester started. (Slurring your words in Shakespeare class isn't fun.) When the little symptoms first started in October, then adding up and getting more intense, I started researching. I was convinced that I had MS so I kind of stopped worrying, I mean, it sucked but its not deadly right? Only a few months earlier I had left my main job to go back to school full time. I changed my major to English and added a minor in Liberal Arts for transfer. I had 2 full time semesters left so I knew I could make it with only my little part time job and my savings. But 2 weeks into my second semester, my headaches forced me to go to the doctor. I met my primary care doctor on January 30th.
I was diagnosed on January 31st 2013 with a brain tumor. First thing I thought was..."can this wait til after Super Bowl?". It couldn't. I was admitted to the hospital the morning of the 1st, and had surgery on the 2nd. (My doctor moved me upstairs so I could watch the game on the 3rd.) Turns out, it wasn't over at that. They got the tumor all out, but the cancerous dust remains. I was given a month to recover from getting cut open (my first surgery ever in my life). I started radiation (7 points!) on the 26th and chemo (Temodar) on the 27th (thanks for the day off UPS). So today is my first Friday.
Since the surgery, I've been forced to move in with my mom and stepdad, out of my apartment that I loved, get rid of my cat, take a medical leave from my job, give up my independence of driving, lose all my freedoms of making my own choices, contact all the people I volunteer for to let them down, and, worst of all for me, drop all my classes for the semester. Even now, almost 3 weeks after I dropped, I still tear up when I think about my classes. I've been looking forward to finishing school so much, it really crushes me to put it off again. I did for 10 years to work full time...and I'm over it.
Best thing to happen so far is my buzz cut (courtesy of my surgery for half, and my sister for the other half). I love short hair!! I've had butt-length hair for almost my entire life and oh my gosh I might never going back!