My husband was recently diagnosed with Lympholymblastic Lymphoma. We were in a transition time of our lives, I had just started a new job a few hundred miles away in a new city. He hadn't moved up yet, because he was finishing up his job, and fixing our townhouse up for renters to move in. He was living with his family while fixing up our townhouse. We were days away from going to run the Boston Marathon this year when we found out the news.
He has to be in the hospital for a month, then six months of outpatient chemo, then two years of maintenance. I'm living with his parents while he is in the hospital, but have to return to my job soon. I think he will continue his treatment close to his family and support system. We don't know anyone in our new city yet, and we can't imagine going through all of this alone.
Since I just started my job, I don't qualify for Family Medical Leave. I am also the primary breadwinner, and we cannot have an interruption in insurance with Personal Leave of Absence. So, I will be commuting every other weekend to see him for six months. We are very lucky he has such loving parents, family, and friends near his home. His mom has over three months of sick time saved up that she can use, and qualifies for medical leave from her job. She is able to be the primary caregiver, which is a huge blessing.
I'm curious if anyone else has had to be away from their sick spouse for an extended period of time during cancer treatment. How did you manage care-giving? How did you cope having to be so far away for so long?
I'm looking for any support, resources, guidance you can provide.