PNET/Ewing diagnosed for 3months old

Our daughter is 3 months old now and one month back we noticed a lump in her left shoulder. Subsequent tests for diagnosis went on for a while and biopsy results & IHC came in as PNET/Ewing. Doctors are saying this is very rare as they have never seen such a case at this age and this location. It looks to be non related to bone too. Planning to start up with chemo to reduce the size and then go for surgery & follow up chemo. Any inputs are welcome in case if any one has a similar case history with new born infant!

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