It looks like you're new here. If you want to get involved, click one of these buttons!
I am trying to get my 18yr old son on board with reaching out, but so far, he is in his own world right now. A week after HS graduation, he was diagnosed with AML. Over the last 6 weeks, his diagnosis has expanded to: AML M2 with FLT3 ITD and TKD (yep, dual mutations) and NPM1 and normal cytogenetics. Only 1-2% of all AML cases present with dual mutations of FLT3. His doctors are unsure of how these mutations will respond together. So far, his induction chemo seems to have worked well, though he hasn't had a follow up BMA yet. That is Monday, and then he will start his first consolidation round. He is going to have a BMT as his risk of relapse is 90%. I've been a little worried about him lately as he seems to be in a bit of a funk. Hoping it is he is just down about losing friends as opposed to a relapse as he's sleeping more then normal, even for him. I know exhaustion can be a sign of Leukemia, so I'm hoping it's not that. His blood draws have been good since he was discharged after spending a month in the hospital during his induction phase. A relapse this quickly would not be good. I'm anxiously awaiting the results of his BMA next week.
Despite having his world turned upside down, he seems to be keeping a really positive attitude. The hardest part is losing his bf. He pretty much bailed on him after his diagnosis and now is moving 4 hours away. We are encouraging him to get out and do things as his health permits. His immune system is up, so he has gone to the movies, went out to watch fireworks and visited with friends.
There is nothing harder as a parent, then watching your child go through something so huge as this. OK, so harder would be him not making it. But hopefully you knew what I meant! How can I help him? I'm trying not to smother him, but he takes careless risks without thinking about the consequences. So it's hard for me not to hover.
Thanks for talking to a mom.