Back in September I had a pesky lump removed from my left middle finger that had been there for at least 3 years and had caused me no pain. It was misdiagnosed as benign, but after the surgery the surgeon told me the tumor didn't look like what he was expecting, and that further testing was needed. It came back as epithelial sarcoma, an extremely rare and purportedly very aggressive soft tissue malignancy. I am a 25 year old musician who, after 5 weeks of radiation, will lose his finger.
However, My initial PET/CT scans came back clear. So there IS good news, too! My goal lately has been to keep myself as healthy as possible to help minimize recurrence/mets, but between these efforts i can't help but feel concerned about what the future holds. i know its pointless to ruminate over countless "what if" scenarios- especially considering the rest of my body is still relatively healthy. but since this type of sarcoma is so rare, its hard to find comradery with anyone else who has been through it. Is there anyone out there who has been affected by this type of cancer that can offer me some advice?