Was just diagnosed with inflammatory breast cancer on Dec 30 - happy new year to me!
Started having breast issues in late Nov and had a heck of a time with the round of docs because "you are young, so this probably isnt cancer" and "cancer isnt painful so this probably isnt cancer" and "it cant be this type of cancer because that is so rare"...:rolleyes2:
well guess what - mine is PAINFUL, rare (less than 1% diagnosed have this type) and CLEARLY im not too young since i HAVE it.
Im triple negative so hormone therapy is out. Chemo port due for insertion Jan 21 and tentative 4 months of chemo before surgery to get this sucker knocked back a little. Then more chemo afterwards and possible radiation pending test results. I've spent all day today getting the CT, MRI and Friday is MUGA for the chemo.
Just needed a little vent about how i was treated (or NOT treated) for over 40 days for the pain because at first they kept saying I had mastitis, and later I quote one of the docs "well it isnt something to worry about since we will remove the nipple and breast during the mascetomy"...um, HELLO? (this was the first time i had 'mascetomy' thrown out and of course i freaked.)
As it turns out i have MONTHS before the surgery, and ended up having to go to my GP doc to get pain meds! Is this type of situation something I am going to have to deal with for the rest of the time with docs? They are so busy looking at my one breast that they are ignoring the rest of me. (well unless you count the fact that they are now recommending i get a double mascetomy to 'prevent future issues') :mad: