It looks like you're new here. If you want to get involved, click one of these buttons!
amandabcs;1555 said:-Either the quick response, "oh, but your ok now right!?" almost as if I'm contagious.
Dawn Manoly;1553 said:Oh any of course my favorite is (I am sure everyone else has heard this one at least once!): Oh you have cancer, I had a (fill in the blank - cousin, uncle, grandmother and etc) who died of cancer.
xojessica;1561 said:A few days ago I got "Skin cancer? Don't you just get surgery and its gone?" ... uhh... no... you get multiple surgeries, chemo treatments for just over a year) and follow up MRIs, CT scans and blood work for the rest of your life.
xojessica;1571 said:Oh, also, having Melanoma people often show me their moles and ask them if I think its cancer. I never know how to respond to that, other than say, "If its something thats bothering you, you should go see your doctor".
amandabcs;1555 said:Almost always it's the same response when I tell someone (for whatever reason) that I had cancer. -Either the quick response, "oh, but your ok now right!?" almost as if I'm contagious.-I HATE this one: Suddenly it makes sense for them to tell you about someone they knew or heard of that had your type of cancer...but died from it. Thanks.
Ldr12;1583 said:Being "okay" now, yeah right. It's almost as if they can look down on me now for having any fault. I shouldn't feel like I have that pressure on me. So nuts to them.My favourite jerk line was "Well at least you don't have AIDS. That will kill you." Uh, what?
Ldr12;1583 said:Being "okay" now, yeah right. It's almost as if they can look down on me now for having any fault. I shouldn't feel like I have that pressure on me. So nuts to them.As for death, I don't tend to get that. Instead, it's usually "isn't that just some kind of infection?"My favourite jerk line was "Well at least you don't have AIDS. That will kill you." Uh, what?
Dawn Manoly;1553 said:I'm also tired of the religious folks I know who tell me, well if you start praying to god blah blah blah. Basically insinuating I brought both of my cancers on myself because I'm not a god fearing person. Some of the other ones that I have heard numerous times and still gets on my nerves....That which doesn't kill us makes us stronger. There is a lesson in all of this.Everything happens for a reason.Wow, you still have your hair, you look great.Well you didn't want kids anyway, right? (this one is high on the list of what has pissed me off)Oh any of course my favorite is (I am sure everyone else has heard this one at least once!): Oh you have cancer, I had a (fill in the blank - cousin, uncle, grandmother and etc) who died of cancer.
Tara;1628 said:WORD!!Worst line I got was from my own Doctor (GP)!! She rang me up the day of my diagnosis to say 'You were the absolute LAST person I EVER thought would get cancer'!!! >:( Gee thanks! I guess that's why I was misdiagnosed for almost a year! #FAILOh and the 'at least they caught it early' bullshit; I was almost Stage 3 and complaining about symptoms for 9 months; how is that 'early'?!? Gah! >:(Oh I almost forgot; if you have cervical cancer (even the type I had where I tested negative for HPV); people think you're a slut. I know of a fellow survivor who had some lady say to her "oh well, we all know why you got THAT type of cancer" (snickering - as if she somehow deserved it.) What a load of toss!! #rage We both went for annual Pap tests and they were ALWAYS normal and we each have long-term b/f's and we are NOT sluts. Some people have no fucking clue!
amandabcs;1651 said:When I was dx'd in 2009 the pathologist said my tumors were likely growing for 6-8 years but the recent estrogen from my back to back pregnancies really sped growth up. Anyway, in 2005 I went to Planned Parenthood and had this lump 1st looked at. A Nurse Practitioner felt me up then told me to drink more water, take Vitamin E and reduce my caffeine, that I had fiberous breasts and she could just tell, it was a cyst. Hmmmm. Wonder where she is now, wonder how many other young women with cancer went under her radar?
Dawn Manoly;1653 said:Unfortunately, that is a common situation for most of us YA survivors. I had abnormal periods for over 10 years before I was diagnosed with endometrial cancer at 25. I was mis-diagnosed with "IBS" for 8 years before i was diagnosed with small bowel cancer at age 35. Even though the doctors knew of my previous history of cancer and family history of colon cancer (small bowel ca is often related) they never ordered a CT until I was on death's door. I have been having pain in my right breast for the past several years, had many mammograms and ultrasounds....results are "probably benign", most likely fibrocysts they say. The insurance won't approve an MRI. The Vitamin E and B6 does help with the pain....but still, with both of my other cancers I had symptoms for years, I still worry that breast cancer is going to be the next one on my plate. A third cancer is not going to be a charm. So for now I continue with mammograms and ultrasounds every six months. Ugh!
amandabcs;1654 said:Hey you sound like a great candidate for a THERMOGRAM. Insurance doesn't usually pay but I think they run $100-$150. It is an excellent diagnostic tool for early prevention but is only to be used in conjunction with other tools. Girls our age SHOULD NOT have to get mammograms so early because they cause more damage than prevention in most cases. None of my cancer showed up on one, nor did any of my Breast Friends. Thermography senses temperature changes, so with the vascular nature of carcinoma, images are taken and compared with normal, healthy images. It's cool because it's not invasive, contains no radiation and can be a great tool for prevention. I learned about it post-trtmt but since I only had 1 breast with CA then I will get a thermogram when I can afford it, on the other breast. I've had a few MRI guided biopsy's on the healthy breast so it would be a way for me to follow those spots. However, MRIs every 6 months is currently the best diagnostic tool for me.
Kenny Kane;1657 said:When my dad was diagnosed in 2005 at 50 with Testicular. They told him he had the "good type of testicular cancer." We didn't share the sentiment.
Lisa Laura Moore;1663 said:Thanks for making me laugh today, guys. I've heard so many of these --- the "at least they caught it early" (my lump that I'd complained about to docs and dentists for years before diagnosis - the cancer that was already invading nerves and lymph nodes). --the "your positive attitude will get you through this" (said on a particularly lousy day -- made me want to smack her up side the head). --the "how are feeeeeling?" every day from a coworker who rarely stuck around to hear the answer. (I got the distinct feeling she was asking just to check it off her list of "things to do today")But, the absolute worst was from my father. (as a bit of back story, at about the same time I was diagnosed, my sister, was finishing up the tail end of a divorce, was forced to sell her house, and had recently lost her very good job) My father sat me down and very sincerely told me that "looking at you and your sister has made me realize how lucky I am" he then proceeded to list everything that was wrong with my sister and my life. yikes. I know he meant well, was just trying to wrap his head around everything, but... probably not the best way to say that.Lisa
cherrichiodo;1748 said:People who reply with the "good cancer" comment are idiots and have probably never been affected by the disease (otherwise they would NOT be making that comment). Regardless, people say some stupid crap when they really don't know what to say. I took my 13 yo daughter to see the gyno (almost 9 months post radiation) to discussed Lauren's menopausal symptoms. I had mentioned that I was a little upset that the rad onc didn't explain in great detail that the radiation would most likely cause the menopause (not to mention so much scar tissue she would need surgery). She said "Not everyone needs to have children. I don't have any children and I am fine." My mouth just dropped open.
deltadawn;1270 said:I told an acquaintance that I was about to start chemo; he said he had it worse - he was about to have a colonoscopy. I told him I would rather stick a camera up my ass every day for a year than go through chemotherapy.
RaeLeah;3194 said:I let my bio teacher know about the fact that I had a stem cell transplant. Her response? "That's so cool! I had a near-death experience recently too."Gee. Thanks. Yeah, the whole being-hooked-up-to-tubes-thing-while-being-isolated-in-a-room-for-6-weeks-and-throwing-up-every-two-seconds-while-feeling-like-you're-gonna-die experience was just SO cool.
amandabcs;3195 said:Oh, I'm 'dying' to know what her experience was!? Unless it was a stem cell transplant, then she sucks and needs to be put in check...but it always amazes me how people equate an experience they've had, to one they haven't. Apples and oranges people!