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Melissa Tweed;1930 said:Thanks for this! I have talked with people from Lynch Syndrome International but didn't know about the Colorectal Cancer Coalition!Its good to have people stand by you when you realise you have not just a family history of....... but you now have a genetically confirmed mutation. Sometimes I think I medically discovered my "fate". Don't get me wrong, I'm so glad to have done the testing! I am determined that I will be the one in my family that lives! You know... unless I do something stupid like hanglide over rush hour traffic. I guess the support is in the knowledge that others watched their family die young and we are still survivors. I got the info to my 5 remaining relatives when I got the news. I was practically shouting," Go to your Drs! The last of us remaining will live! Don't worry about me, go get tested!" I leave it up to them though b/c some have said they don't want to know. Cancer sucks! But lynch cancers are a mind wrecking light engulfer that is a nail in your mind for life... and you never know when the next nail will be hammered in.