Acinic Cell Carcinoma

Anyone else out here with Acinic Cell Carcinoma? It's extremely rare, and just to make things more fun, I seem to be getting really fast recurrences in really strange places- it starts out as a head/neck cancer, but I've had spots on my spine, hips, and now my right leg. FUN.

This is a rare cancer, so finding other survivors/fighters would be awesome.

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  • Hey beatlejessie,

    My diagnosis is Adenoid Cystic Carcinoma, but I know (online) several folks with the diagnosis of Acinic Cell. Most, I think were older when they were diagnosed. If you are willing to share your email, I am pretty sure at least one of them would be willing to trade emails. You can private message me here or email me at leesuhm -at- hotmail.com. I'd probably get the email faster.

    Lisa

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