So I am 4 months into the 12 mo cycle of temodar and i am wondering if it is really worth it. I mean, it is only buying me time in hope that a real cure is found soon. At least thats what i have been told. My schedule is 5 days on and 25 days off. Seems easy enough, right. The pills are supposed to be milder than IV chemo and the side effects less noticeable...but i am having a rough time with it. I feel like hell for the week i am taking the stuff, and generally sucky for the next two weeks, slowly getting to some kind of normal by the 4th week of the cycle and then i have to start all over again!!!! Its taking a toll on me and i am questioning wether i want to even finish out the 12 months....or just take my chances with the tumor. Is this terribly selfish? I mean, the tumor will come back for sure if i stop. It may or may not come back during treatment, but almost for sure afterwards. So i think "whats the point of feeling like this if its just going to come back anyway?!" i mean , how likely is it that there will be a major breakthrough within the next 8 months with this specific kind of tumor? then i stop and think about how much longer i might get with my kids and husband and i think it would be worth it. but is it really worth it if i am miserable and grumpy most of the time? Such a hard thing to have to decide.
Have any of you dealt with this issue? how did you handle it? What were your pros and cons?