I'm Vasanth from India. I'm a GBM tumor survivor with 5+ yrs. I was diagnosed by Jan 2006 and underwent Surgery followed by Radiotheraphy and Chemotheraphy for 2 months. I was advised to come for checkup every 6 month and MRI scan for every year for the next 5 yrs. I did that and went for my final MRI this March. Result came positive. There is no recurrence and so am fully cured. Doctors said that its a miracle. He didnt tell anything about my future checkup and he asked to reduce the tablets. Surprising and Shocking too..
- Left Occipital Glioblastoma Multiforme - Diagnosed When i was 19 yrs old - Now am 24 yrs old.. - Post Operative treatments - Radiotherapy and Chemotherapy.
I still have some fear regarding the survival period as i have to decide about my marriage life at this stage. Without knowing my survival period i dont want to give commitment to anyone. Is there anyone who can help me in that? I searched for the Longest survival rate for GBM tumors but i didnt get the proper information. What i heard is that on ly 1% of ppl with GBM tumor survive more than 5 yrs. If its true then, am an exception to cross that happily without any symptoms for the past 5 yrs.
To add more information about my GBM
The CT Scan report which was taken before the Surgery says,
- An isodense mass 2.5 x 1.9 cms involving the left side of the occipital lobe and deep left parietal lobe. The lesion shows no calcification. - Grade III vasogenic odema present. - Left occipital horn is effaced, the body of left lateral ventricle shows deformity and compression posteriorly.
As per my discharge summary:
Diagnosis: Left Occipital Glioblastoma Multiformae.
Surgery: Left Occipital Craniotomy and Excision of Tumour.
After proper immobilisation, treatment planning and simulation, patient was started on external beam radiotherapy on Linear Accelerator. Using 6 MV photons a total dose of 60 Gy in 30 fractions was given to the brain lesion by 3 field parallel pair technique from 30-01-2006 to 13-03-2006.
Took Tablet Gliotem 140mg and Graniset 1 mg, 30 minutes before radiotheraphy.
Any kind of suggestions are welcome for this post as i need to get the feedbacks from the experts here for my case...