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Mishanne

About

Username
Mishanne
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Moderator
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13
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Comments

  • 37 years young! Young enough to fit the definition of young for young adult cancer here at least. I'm 31 myself so I've stopped thinking of the 30s as old I hope they figure it out for you soon.
  • Can't comment on lymphoma specifically but I've heard/read many stories of young adults having it take awhile for their cancer to get diagnosed. Cancer or not I think it's important you advocate for yourself and make sure the doctors actually figure…
  • I've tried turmeric for anti inflammation already - not sure if it's helping. I'm in WA state so cannabis is legal but I do pretty well with prescription meds for pain and nausea and the smell of cannabis itself makes me nauseous and cough (which ma…
  • My Latest Update: My cancer progressed again on the ImmunoRAD trial... This year I've been trying targeted therapy but keep having to hold treatment for fevers. I started with the Dabrafenib/Trametinib, then just Dabrafenib, then Vemurafenib/Co…
  • I got a port earlier this year finally... It's a relatively short easy procedure but I was anxious because I don't like needles/scapels and such - I let them know ahead of time I wanted to be as sedated as possible and they accommodated so I don't r…
  • I definitely have some trouble accepting help at times... Maybe in part I don't want others to put themselves out but mostly I think it has to with me being 31 years old and wanting to be independent! For example people from work have volunteered in…
  • I think your psychologist is exactly right... The most distressing thing as a cancer patient is to have friends that used to talk to me regularly disappear from my life after a "I'm so sorry, let me know if there is anything I can do" - then I never…
  • Isn't it great the drug cocktails we get for cancer and the side effects? *rolls eyes* Currently I have 5 different specific times a day I have to take certain drugs... Plus whenever I need pain or nausea medication. I'm on Dabrafenib for treatment …
  • I have all sorts of nausea problems but maybe not the same as yours... I take Zofran for the normal nausea and omeprazole for the drugs ruining my stomach nausea (for which normal nausea meds don't help either)... Then I also do the diet stuff like …
  • I use turmeric as well but I believe it's purported to help with inflammation - which would mean it will help with only pain that is caused by inflammation? I used to take ibuprofen until my stomach got screwed up so now I use turmeric, Tylenol, and…
  • In the end for medical questions you really have to rely on doctors - if you are unsure with the doctors you have nothing wrong with getting a second opinion elsewhere though! Sorry you are going through this.
  • Make sure you take care of yourself too, continue getting whatever help you need. Because if you don't take care of yourself it's hard to really be there for anyone else. My relationship failed due to my cancer and I realized too late that I should…
    in Helping Comment by Mishanne March 29
  • I struggled with memory trouble after some of my treatments - I was working as a structural engineer and found myself not able to remember simple instructions after treatment. I would have to write everything down on post its or in a notebook as soo…
  • I had brain surgery and gamma knife radiation for melanoma brain mets this last summer. Came through relatively side effect free once the weird clicking in my head healed, but the steroids combined with the anti seizure meds (keppra) were literally …
  • I tell everyone about my cancer... but I don't always share things right away. Sometimes I find I need some time to grapple with changes in my own head first before I'm prepared for other's comments and questions. There are always people that say le…
  • Glad things are going well for you!
  • Here is an excellent place to complain, I don't think anyone can be "strong" all the time - it takes too much energy! Staying busy helps me a lot too. I can't work at all anymore but I try to find activities I can do at home other than sitting and w…
  • I am sorry dating or relationships with cancer is tough! I'm 30 in treatment for metastatic melanoma the past 5 years and I've given up on it completely, I was in a relationship at first but it didn't last. I enjoy male friends but I make it clear …
    in Dating Comment by Mishanne February 28
  • Wow that sounds scary! Glad you survived it. I have only ever had a couple mild allergic reactions - once to oxycodone and once to morphine - both which caused a rash and shortness of breath but were fixed relatively quickly with Benadryl. First was…
  • I have stage 4 melanoma, I was first diagnosed at 23 years old as stage 3 but they were able to surgicallly remove it all. A few years later it came back in my lungs and now at 30 I am still alive but have mets spread various places. Currently part…
  • I have stage 4 melanoma, I was first diagnosed at 23 years old as stage 3 but they were able to surgicallly remove it all. A few years later it came back in my lungs and now at 30 I am still alive but have mets spread various places. Currently part…
  • I have stage 4 melanoma, I was first diagnosed at 23 years old as stage 3 but they were able to surgicallly remove it all. A few years later it came back in my lungs and now at 30 I am still alive but have mets spread various places. Currently part…
  • I think the important idea is to not compare cancers, illnesses, or people - generally ends in some one or another feeling bad. I have been in and out of treatments for metastatic melanoma almost 5 years now, yet before it returned I remember I just…
  • Exactly right, I don't have energy to worry about the rest anyway! Thanks
  • My parents visit every other week, and my sister on occasion... most the extended family I don't hear from often anymore, and very few old friends keep in touch at all. I've found some new friends online to chat with though
  • Yep, got to be there for yourself at least! Still it's nice when others remember you.
  • You know that saying "out of sight out of mind"? Sometimes I think that applies... I have been in and out of treatment for the last almost 5 years now for stage 4 melanoma. At first I got lots of messages, cards, flowers, visits, etc. Now mostly jus…
  • I was first diagnosed in grad school, took a semester off, then returned to finish up the last semester. It was a bit tough to get back in the swing of things but fortunately I had just had surgery and no other treatment to wear me down. My professo…