To the Stupid Cancer community:
The outbreak of COVID-19 has proven to be a stressful time for people. Fear and anxiety about a disease can be overwhelming and cause strong emotions as most of you already know. Stupid Cancer recognizes the immense stress this adds to the AYA community and would like to share some coping mechanisms we have available to you though our programs and partners.
Here are a few things the CDC recommends you can do to support yourself in these trying times:
- Take breaks from watching, reading, or listening to news stories, including social media. Hearing about the pandemic repeatedly can be upsetting.
- Take care of your body. Take deep breaths, stretch, or meditate. Try to eat healthy, well-balanced meals, exercise regularly, get plenty of sleep, and avoid alcohol and drugs.
- Make time to unwind. Try to do some other activities you enjoy.
- Connect with others. Talk with people you trust about your concerns and how you are feeling.
How has the COVID-19 crisis affected you?
You can help Stupid Cancer better understand the impact the current public health crisis has had on the AYA community. We joined forces with Embleema to gather and share real time information on the impact of COVID-19. Your feedback is critical to our understanding of how the community is responding to increased social isolation, anxiety, and the impact on your treatment. By participating in this survey, you are letting us know how we can help you navigate the changing treatment landscape and what programming will better serve you in this difficult time. You will get an understanding of the impact of the disease on other AYAs while contributing to critical public health research.
To participate, click here.
Stupid Cancer has virtual resources for you to explore while we practice social distancing:
We host webinars with a reputable partner who has plenty of valuable information for you! All of our past Webinars is posted on here, as well as the information needed to register.
Time: Thursday, November 12 at 2:00 pm ET
Adolescents and young adults facing cancer experience unique challenges — as do those who love and care for them. In honor of Family Caregivers Month, we’re bringing together a panel of caregivers to talk about their caregiving journeys and the difficulties and joys they face as a parent, spouse, sibling, or friend to an AYA dealing with cancer.
Time: Monday, November 16 at 3:00 pm EST
In partnership with the Tigerlily Foundation
In addition to the challenges that all adolescents and young adults face when diagnosed with metastatic breast cancer, Black patients must also navigate a range of disparities in healthcare including medical bias, later stage diagnosis, and higher mortality rate. This webinar will bring together patient and HCP voices to share their experiences, engage in the ongoing dialogue to address these disparities, and suggestions for actionable ways to collaborate to eradicate disparities.
Time: Wednesday, November 18 at 3:00 pm ET
Speaker: Vivianne Celario, Pharm. D.
Learn more about the role your pharmacist can play to support your cancer journey. This webinar, made possible by our partnership with Walgreens, is an opportunity to engage directly with an important yet often overlooked member of your oncology care team. Submit questions for expert pharmacist in advance to email@example.com or ask during the live Q&A.
- Ask the Expert: AYA Thyroid Cancer – October 8, 2020
- Trauma Resilience – September 29, 2020
- More than a Pain in the Neck: A Conversation with Thyroid Cancer Survivors – September 24, 2020
- Message from the Cancer Club: For Health Care Providers – August 27, 2020
- Turning Your Cancer Story Into Comedy – July 14, 2020
- COVID-19 Concerns: Part 2 – May 12, 2020
- Mindfulness When Our Minds Are Full – April 16, 2020
- Coping with Isolation and Fear – March 24, 2020
- COVID-19 Concerns – March 13, 2020
To view all past webinars click here.
Stupid Cancer Digital Meetups are a chance to have fun and connect with your peers with no stigma, and without leaving your house! Digital Meetups happen every Monday night at 9 pm EST and Thursday night at 8 pm EST on your laptop or phone! For more information click here. Stupid Cancer can also help you organize your own Digital Meetup, reach out to Avni at firstname.lastname@example.org to find out how, or if you have any questions!
Upcoming Digital Meetups:
Stupid Cancer Stories:
We are not unaware of the effect that the COVID-19 pandemic has had on day to day social interactions. We know social distancing and isolation are things that the AYA community are no stranger to. We hope that Stupid Cancer Stories can be an outlet for you to not only read about your fellow AYA community member’s experiences, but you can also share your story. Sharing your story can have significant psychological and physical health benefits that can be crucial at this time. It can be healing and finding your voice can be empowering. It can help you connect with others, and motivate the AYA community. If you’d like to add your story to the Stupid Cancer Story Library, click here to upload your video or blog post.
A New Website Offers Support for Adolescent and Young Adults With Cancer During the COVID-19 Pandemic – A Conversation with Archie Bleyer, MD. Read now.
Finding credible resources and information for adolescent and young adult cancer patients and survivors during the COVID-19 crisis can be difficult. This website provides a listing of resources and programs for patients and survivors and disease specific recommendations for healthcare professionals through a collaboration of leading patient advocacy groups and oncologists specializing in adolescent and young adults affected by cancer. Click here.