COVID-19 Updates

To the Stupid Cancer community:

The outbreak of COVID-19 has proven to be a stressful time for people. Fear and anxiety about a disease can be overwhelming and cause strong emotions as most of you already know. Stupid Cancer recognizes the immense stress this adds to the AYA community and would like to share some coping mechanisms we have available to you though our programs and partners.

Here are a few things the CDC recommends you can do to support yourself in these trying times:

  • Take breaks from watching, reading, or listening to news stories, including social media. Hearing about the pandemic repeatedly can be upsetting.
  • Take care of your body. Take deep breaths, stretch, or meditate. Try to eat healthy, well-balanced meals, exercise regularly, get plenty of sleep, and avoid alcohol and drugs.
  • Make time to unwind. Try to do some other activities you enjoy.
  • Connect with others. Talk with people you trust about your concerns and how you are feeling.

How has the COVID-19 crisis affected you?

You can help Stupid Cancer better understand the impact the current public health crisis has had on the AYA community. We joined forces with Embleema to gather and share real time information on the impact of COVID-19. Your feedback is critical to our understanding of how the community is responding to increased social isolation, anxiety, and the impact on your treatment. By participating in this survey, you are letting us know how  we can help you navigate the changing treatment landscape and what programming will better serve you in this difficult time. You will get an understanding of the impact of the disease on other AYAs while contributing to critical public health research.

To participate, click here.

Stupid Cancer has virtual resources for you to explore while we practice social distancing:

Webinars:

Once a month, we host a webinar with a reputable partner who has plenty of valuable information for you! All of our past Webinars is posted on here, as well as the information needed to register.

Returning to Work After COVID-19
Presented by Triage Cancer in partnership with Stupid Cancer
Time: Wednesday, August 19 at 12:00 pm EST
Speaker: Joanna Morales, Esq

In this webinar, learn up-to-the-minute information about recent changes to laws and rules affecting employment with a focus on returning to work, understanding health insurance options, and other consumer assistance programs during COVID-19. Free contact hour/CE available for nurses and social workers.

REGISTER NOW

Message from the Cancer Club: For Health Care Providers
Time: Thursday, August 27 at 2:00 pm EST
Speaker: Dr. Rebecca Johnson

Using insights gathered by a local AYA Council and presented in the award-winning video “Message from the Cancer Club,” this presentation will provide healthcare professionals with first-hand descriptions of what AYAs want their cancer care to look like, touching upon the unique aspects of this patient population. Attendees will learn novel strategies for creating mutually authentic, open, and honest working relationships with AYA patients.

REGISTER NOW

Trauma Resilience
Time: Tuesday, September 29 at 3:00 pm EST
Speaker: Ashley Williams, LCSW; NASM-CPT

The cancer journey is characterized by varying types and levels of trauma. Some are easy to recognize, while others lay dormant and can wreak havoc on our bodies and minds. In this session, we will discuss the insidiousness of trauma, identify trauma responses, and explore how to build trauma resilience during and after your cancer journey.

REGISTER NOW

 

Past Webinars:

To view all past webinars click here.

Digital Meetups:

Stupid Cancer Digital Meetups are a chance to have fun and connect with your peers with no stigma, and without leaving your house! Digital Meetups happen every Monday night on your laptop or phone! Log on at 9 pm Eastern / 6 pm Pacific. For more information click here. Stupid Cancer can also help you organize your own Digital Meetup! Reach out to Dana Brown, dbrown@stupidcancer.org to find out how, or if you have any questions! 

Upcoming Digital Meetups:

               

Upcoming Local Meetups (Digital):

Stupid Cancer Stories:

We are not unaware of the effect that the COVID-19 pandemic has had on day to day social interactions. We know social distancing and isolation are things that the AYA community are no stranger to. We hope that Stupid Cancer Stories can be an outlet for you to not only read about your fellow AYA community member’s experiences, but you can also share your story. Sharing your story can have significant psychological and physical health benefits that can be crucial at this time. It can be healing and finding your voice can be empowering. It can help you connect with others, and motivate the AYA community. If you’d like to add your story to the Stupid Cancer Story Library, click here to upload your video or blog post. 

You can read Stupid Cancer Stories on our blog or watch some on our Vimeo channel!

Follow us on social media to stay up to date on everything Stupid Cancer: Instagram | Facebook | Twitter | Medium | Vimeo

Adolescent and Young Adult Cancer Coalition: COVID-19

A New Website Offers Support for Adolescent and Young Adults With Cancer During the COVID-19 Pandemic – A Conversation with Archie Bleyer, MD. Read now.

Finding credible resources and information for adolescent and young adult cancer patients and survivors during the COVID-19 crisis can be difficult. This website provides a listing of resources and programs for patients and survivors and disease specific recommendations for healthcare professionals through a collaboration of leading patient advocacy groups and oncologists specializing in adolescent and young adults affected by cancer. Click here.

Other helpful online resources: 

Walgreens COVID-19 Updates

WHO (World Health Organization)

ASCO COVID’s Frequently Asked Questions

How to Read Your Pathology Report, provided by the College of American Pathologists

National Cancer Institute

COVID-19 Fertility Preservation Update