For some of the most critical topics, we know there’s always more to say. Some things we just need to talk about.
Discussion Series are an opportunity to take a deep dive into the most important issues. Join for one session, or participate in the entire month-long series for extended learning and discussion in a group setting.
Each ninety minute online workshop will focus on a different aspect of the overall topic, featuring a presentation and small group discussions. The first 30 minutes of the session will be a recorded presentation to be shared on our website as a mini-webinar available to our full community. The final hour will be a confidential discussion section and will not be recorded.
October Discussion Series:
Focus on Caregivers
Tuesdays from 5:00 - 6:30 pm ET
Navigating the Caregiver Role
Facilitator: Sarah Paul, LCSW, OSW-C
Tuesday, October 5
When thrust into a caretaking role after the diagnosis of a loved one, there are a lot of new demands and responsibilities for you to manage…and there’s not always a clear path of how to navigate the new role. From practical concerns like tracking medications and appointments, to personal concerns like how to adjust your relationship to your patient and establish healthy boundaries (not to mention taking care of your own personal or professional responsibilities!), it can be a big learning curve. Join this open discussion with other AYA cancer caregivers to share best practices and strategies about settling into your role as a caregiver.
Adapting to a Changing Relationship
Facilitator: Alyson Erardy, LMSW
Tuesday, October 12
Some caregiving challenges are universal, while others are specific to your relationship type. As you settle into the new roles of “patient” and “caregiver,” there are bound to be effects on your core relationship. As a parent to an AYA patient, you have to balance your child’s growing independence with their need for care. As a romantic partner, you have to keep a spark alive while dealing with the gritty realities of treatment. Siblings, friends, and other caregiver relationships all have their own complexities. Join this open conversation to dig into and explore the unique challenges of your caregiver relationship with others that understand.
Specific Caregiving Challenges: Caring for Metastatic Patients and Caregiving as a Survivor
Facilitators: Sarah Paul, LCSW, OSW-C and Marlee Kiel, LCSW
Tuesday, October 19
This week will be a split focus between two specific caregiving communities: those caring for metastatic AYA patients and survivors turned caregivers.
While for many, the intensity of a caregiving experience is a finite time during treatment, for caregivers of metastatic or chronic patients, the caregiving never ends. This conversation with other metastatic caregivers will create an opportunity for you to build community and resilience for caregiving in the long-term.
For cancer survivors that become caregivers to their loved ones, the caregiving experience can be especially complicated. It might be difficult to separate your experience from theirs, or it might intensify your own fear of recurrence. How do you care for your patient, while dealing with your own triggers or lasting effects from treatment? This discussion will provide space for survivors to learn from each other as you navigate a new side of the cancer experience.
Thank you to our sponsor:
Caring for the Caregiver
Facilitator: Mary Hanley, LMSW
Tuesday, October 26
You’ve heard it a million times, but it’s still true: you have to put on your own oxygen mask before helping anyone else. It can feel impossible to prioritize your own needs while caring for an AYA with cancer, but if you aren’t taking care of yourself, you won’t be able to properly care for your patient. In this discussion, share and learn self care strategies to help you avoid burnout, navigate your work/life balance, and protect your mental health as a caregiver.