Caregiving

Caregivers to adolescent and young adult cancer patients face incredible challenges, often without any direct support. As a caregiver, you might be supporting your patient by keeping track of medications, transportation to treatment, managing insurance paperwork, added household responsibilities, providing emotional support to your AYA…while also trying to find time to work or go to school. Whatever your relationship to your patient, cancer is likely to profoundly change your dynamic as you transition from parent, spouse, sibling, or friend into caregiver.

As you care for your AYA, it can be easy to forget to take care of yourself. It may feel impossible, but do your best to carve out time for yourself to relax and recharge. If you’re burned out yourself, you’re not able to take care of anyone else.

Caregivers are very much part of the Stupid Cancer and AYA Cancer community. Just as it can be incredibly meaningful and healing for patients and survivors to talk with others that share their experience, finding a community of fellow caregivers can be helpful to cope with the challenges of caregiving.

Questions for your provider...

Is there a less-expensive generic drug that I can be prescribed?

How long will my treatment last and how much is it projected to cost?

What other prescriptions might I need with this treatment (for nausea, pain, etc)?

Do you have any low-cost or free transportation or lodging while I attend treatments?

Are there clinical trials available for my treatment and what is covered/not covered by the trial?

Questions for the billing department...

How long will my treatment last and how much is it projected to cost?

Can we discuss a payment plan for my treatment?

Questions for your insurance provider...

How much is my copay and/or coinsurance for each visit?

How much of this treatment plan will my insurance cover, are there any options that have greater coverage?

Do I need prior approval from my insurance before I begin treatment?

More on Caregiving...

The Caregiving Journey

Confronting Cancer as a Family

Caregiver Stress & Burnout

Looking to meet other caregivers? Attend a Caregiver Digital Meetup!

Learn about the research

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