Check out our open research studies!
• Hunter College Study:
The FORTIFY study is seeking participants to explore experiences in life after cancer among young adult survivors. Young adult (age 18-39) cancer survivors who have completed cancer treatment between 6 months and 4 years ago are eligible to participate. Participation includes 1) a brief questionnaire, and 2) a 60 minute individual audio and video recorded interview. Earn up to $20 for participation. To see if you are eligible, complete the online screener below.
• Boston College Study:
The primary focus of the current research project centers on investigating racial and ethnic genetic testing disparities with regard to access to genetic testing information, medical treatment as well as the psycho-social impacts of living with hereditary cancer among communities of color.
Female-Identifying: CLICK HERE TO SIGN UP
Male-Identifying: CLICK HERE TO SIGN UP
• UNC Chapel Hill Study:
We’ve teamed up with researchers from UNC to learn how to make online cancer support resources better for you. They are conducting a research study to hear what you think about apps, platforms, and social media for connecting with other young adults with cancer. This study has 2 online surveys, one you can take now and another one they’ll send you in about one month. If you have 20 minutes, are 18-39 years old, and had a cancer diagnosis between the ages of 15-39, you are eligible to sign up.
• Vanderbilt University Study:
Join Vanderbilt University nurse researchers with a passion for helping adolescents and young adults with cancer (ages 15-25). If you are a young adult (ages 18-25) or a parent of an adolescent (ages 15-17) who have diagnosed with any type of cancer, you or your child may be eligible to this study. You (or your child) can create stories to share with nurses during a 5-week online storytelling program.
• University of Ottawa Study:
Are you an adolescent or young adult (16-39 years) who has completed primary cancer treatment? Researchers from the University of Ottawa want to hear from you to better understand the relationship between physical activity, cognitive function, and mental health in young persons treated for cancer. Participation in this online study involves completing a survey, completing three short neuropsychological tests, and possibly participating in an interview (this will only apply to a small subset of participants).
• Johns Hopkins & Kennedy Krieger Institute Study:
The SUCCESS lab at Johns Hopkins & Kennedy Krieger Institute is working to build better support for young people with cancer as they leave high school and they need your help! Click the link below to complete a short survey sharing your experiences after high school and for the option to participate in future studies.
• Oregon State University Studies:
Support networks are important and can help people navigate health care before and after cancer in many different ways. The “Thriving Together” qualitative study is open to transgender and gender diverse cancer survivors and members of their support network. Participants must be at least 18 years old.
The “Opening the Conversation” study will help patients and their partners learn coping and communication skills that can improve your health and relationship after cancer. Patients must have had a breast or gynecologic cancer diagnosis at age 18-39, between 6 months to 5 years ago. All members of the relationship must agree to participate, and the study is open to all sexual orientations & gender identities.
• University of Denver Study:
The “Humor, Friendship & Young Adults with Advanced Cancer” study is recruiting young adults between the ages of 18 and 39 who have been diagnosed with advanced cancer AND a close friend of their selection. The purpose of this research is to qualitatively explore the role of humor in young adults within the context of a close friendship impacted by advanced cancer; to explore humor’s role in the cancer coping and meaning making process; and to examine how humor may help survivors and close friends to maintain authenticity and connection within the friendship. Participants will be asked to complete an informed consent form, two brief online surveys [10 minutes], and a 60-90-minute audio-recorded interview together with their close friend over Zoom.
Eligibility criteria includes a) the cancer survivor must be between age 18 and 39; b) the cancer survivor must have been diagnosed with cancer between the ages of 18 and 39; and c) the cancer survivor must have been diagnosed with advanced cancer as defined by either stage III or IV, recurrent, or metastatic cancer OR severe blood cancer such as AML, ALL, stage III or IV Hodgkin’s or Non-Hodgkin’s lymphoma, multiple myeloma, or a myeloproliferative disorder. The cancer survivor will select a friend to participate in a joint/dyadic interview with them who a) is age 18 or older; and b) has not been personally diagnosed with cancer. Both people should also a) be English-speaking; and b) consent to participation in the study.
• Stanford University
Wondering about your fertility after cancer? Stanford University is conducting a study to empower women to address fertility and family-building issues after cancer. They want to help you make decisions to prepare for the future by creating a website that will be a roadmap to start this journey. The website was designed to help you feel empowered to make decisions about your fertility care and take steps to plan for family-building after cancer now or in the future.
• University College of Dublin
Experiences of injustice can arise at different stages throughout the cancer disease – when the patient is confronted with the feeling of “why me?” after the initial cancer diagnosis (e.g. they have never engaged in any bad lifestyle choice that could have led to cancer), the case of cancer recurrence or in relation to experiences in the hospital (e.g. surgical complications, infections). Especially the young adult cancer community might perceive the cancer diagnosis as unjust as they are more likely to face a greater extent of change in their social role (e.g., family planning, professional career). People deal differently with those feelings of unfairness and for some individuals this could contribute to symptoms of depression which have been associated with problematic recovery and treatment outcomes in cancer patients. Our study tries to understand IF there is a connection between experiences of injustice and mental health, WHAT this tells psychotherapists in the treatment of depression in psycho-oncology and HOW experiences of injustice could be prevented in the first place. If you would like to contribute to this piece of research, are over the age of 18 and have or have had cancer, we would highly appreciate it if you could fill out this survey below (10-15 minutes).
• University of Hawai’i Cancer Center
The University of Hawaiʻi Cancer Center is running a mobile app study to see how it impacts different areas of well-being in cancer survivors – namely, anxiety and cancer-related neuropathy. We are currently asking people who have been diagnosed with cancer and finished primary treatment if they would like to use a mobile app for mindfulness meditation to see if it impacts anxiety or neuropathy.
Interested participants will be asked to follow the link for either anxiety OR neuropathy and to participate in ONE of the studies, for one time only.
CLICK HERE for the anxiety study.
CLICK HERE for the neuropathy study.