Resource Guide: Disease-Specific Organizations
Check out these other organizations that can help provide support on specific issues that impact the adolescent and young adult cancer community.
This page will be updated as new information and resources become available.
Provides comprehensive online melanoma information for patients and caregivers, supports melanoma research; and promotes prevention and education among the general public and medical professionals.
A portal for information, resources and encouragement for young adult survivors affected by a bone marrow or stem cell transplant.
BreastCancerTrials.org (BCT) is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care, by helping patients find studies that are right for them and providing accurate information about clinical trials.
Casting for Recovery (CfR) provides healing outdoor retreats for women with breast cancer, at no cost to the participants. CfR’s retreats offer opportunities for women to find inspiration, discover renewed energy for life, and experience healing connections with other women and nature. The retreats are open to women with breast cancer of all ages, in all stages of treatment and recovery. For over 20 years, women from all walks of life have benefitted from CfR’s inspiring program model.
The Colorectal Cancer Alliance is a community that provides hope and support to colon cancer patients and their families, while saving lives through screening, access, awareness, advocacy and research.
Organizes donor drives to give every patient suffering from leukemia an equal chance to find a match. Connects marrow donors with patients in need.
Young professionals focused on raising awareness and funds for young lung cancer while enriching the lives of those diagnosed with the disease and involved in the cause. Genomics of Young Lung Cancer Clinical Study.
Dedicated to empowering all women affected by breast cancer to live as long as possible with the best quality of life through community and educational resources.
LRF is the nation’s largest non-profit organization devoted exclusively to funding innovative lymphoma research and providing people with lymphoma and healthcare professionals up-to-date information, education and support.
Improving treatment, quality of life and survivorship for children and adolescents with brain and spinal cord tumors through research, support, education, and advocacy.
MRF is the largest independent organization devoted to melanoma. Committed to the support of medical research in finding effective treatments and eventually a cure for melanoma, the MRF also educates patients and physicians about prevention, diagnosis and the treatment of melanoma. The MRF is an active advocate for the melanoma community, helping to raise awareness of this disease and the need for a cure. The MRF’s website is the premier source for melanoma information seekers.
Information and support resources for those of all ages who are impacted by Chronic Myelogenous Leukemia (CML).
Be The Match is a global leader in bone marrow transplantation. The organization conducts research to improve transplant outcomes provide support and resources for patients, and partner with a global network.
The National Bone Marrow Transplant Link strives to help patients, caregivers and families cope with the social and emotional challenges of bone marrow/stem cell transplant from diagnosis through survivorship. We provide vital information through valuable resource
books and new audio books as well as free Lunch & Learns, podcast series, webinars, available online.
OSI Connect is a free resource dedicated to supporting those impacted by osteosarcoma. This unique resource connects patients, families, and caregivers with knowledgeable osteosarcoma expert physicians to answer questions about all aspects of the disease.
Ovarian Cancer Research Alliance (OCRA) is the leading organization in the world fighting ovarian cancer from all fronts, including in the lab and on Capitol Hill, while supporting women and their families.
The Pancreatic Cancer Action Network (PanCAN) is dedicated to fighting the world’s toughest cancer. They are determined to improve patient outcomes today and to double survival by 2020.
Supporting young adults concerned about affected by breast cancer through innovative education, research and support programs.
SHARE is a national nonprofit that supports, educates, and empowers women affected by breast or ovarian cancer, with a special focus on medically underserved communities. Our mission is to connect women With the unique support of survivors and peers, creating a nationwide community where no one has to face cancer alone.
Survivor-led national organization dedicated to addressing the unique concerns of young Jewish women facing breast cancer.
Raising awareness in the fight again testicular cancer, providing community support, patient navigation, and financial assistance.
Testicular Cancer Foundation provides education and support to young men to raise awareness about testicular cancer, the most commonly diagnosed cancer among males ages 15–34.
The Bone Marrow Foundation offers financial assistance and free support services to bone marrow/stem cell transplant patients and their families.
Dedicated to funding blood cancer research, education, patient services and survivorship programs for those affected.
ThyCa: Thyroid Cancer Survivors’ Association, Inc. is made up of thyroid cancer survivors, family members, and health care professionals. The organization is dedicated to support, education, and communication for thyroid cancer survivors, their families and friends. It also sponsors Thyroid Cancer Awareness Month, year-round awareness activities, and thyroid cancer research fundraising and research grants.
Provides education, advocacy, empowerment and support for young women affected by breast cancer through hand-on support, financial assistance, home-based services and a “chemo buddy” program.
An international network of breast cancer survivors and supporters dedicated to the concerns and issues that are unique to young women and breast cancer.
Learn about the research
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