Resource Guide:
Education and Advocacy

Check out these other organizations that can help provide support on specific issues that impact the adolescent and young adult cancer community.

This page will be updated as new information and resources become available.

Aside from what you may already know, ACS has more than 3400 local community chapters who provide support, financial assistance and counseling for anyone affected by cancer.

Provides information, education and advocacy about complementary, alternative and integrative cancer care for survivors, families and providers.

Our goal is to help empower patients, through information, to help them navigate a cancer diagnosis. From initial diagnosis, throughout treatment, and in to all phases of survivorship, Bag It guides patients on how to talk to their healthcare providers, ask questions, and serve as the most important advocate on their care team.

Cancer resources that empowers patients, survivors, caregivers through individualized organizational tools and resources.

The Cancer Legal Resource Center (CLRC) provides information through its free and confidential national telephone assistance line, outreach programs and community activities to educate and to support cancer patients, their families, healthcare professionals and advocates on matters like maintaining employment through treatment, accessing healthcare and government benefits, taking medical leave and estate planning.

Professional support services for anyone affected by cancer with an emphasis on quality-of-life survivorship issues.

The Cancer Warrior Alliance delivers cancer support resource information to the cancer community by building relationships with and providing resource information to clinics, hospitals and those affected by cancer, and informing and empowering everyone in the
cancer community to obtain resources and attend support and information events.

Professional counseling, facilitated peer support groups, creative workshops and financial assistance for young adults with cancer.

Canada’s largest bilingual online resource for young adults, caregivers, family and friends. It provides instant access to the resources and support services that help guide you through your cancer experience. The online community puts you in touch with other members, their stories and knowledge, and the support you need in your fight.

The work of CDC includes innovative communication approaches to promote cancer prevention, screening and early detection, research, and evidence-based programs.

Online resources about chemotherapy treatments and managing side effects featuring survivor forums, message boards, nutritional counseling and long-term concerns.

CURE Media Group’s flagship product, CURE magazine, is the indispensable guide to every stage of the cancer experience. CURE Media Group’s offerings also include its online resource; live meetings; a resource guide for the newly diagnosed; and the Extraordinary Healer national nursing award. CURE Media Group combines science and humanity to make cancer understandable.

CureSearch for Children’s Cancer accelerates the search for cures for children’s cancer by driving innovation, overcoming research barriers, and solving the field’s most challenging problems by catapulting strong medical research and providing resources and education.

Elephants and Tea is a media company with the mission to help AYA patients, survivors and caregivers experience relief through self expression, inspiring others during their cancer journey and connecting people with supportive organizations across the nation. It
has the only magazine written for and by AYA cancer patients, survivors and caregivers telling their story in their own words.

Fuck Cancer is dedicated to prevention, early detection and providing emotional support and guidance to those affected by cancer. The organization runs digital and on-the ground programs and events that seek to change the way people think and talk about cancer, ultimately improving health outcomes.

GRYT Health, a digital health company, helps ensure that cancer patients, survivors and caregivers have the information to choose what’s right for them at every step of the journey.

Offers free educational classes and consultations, support groups, counseling, and mind-body/wellness programs designed to help those affected by cancer understand and live with its impact.

Survivorship advocacy, support materials, grant-assistance, online community forums and national visibility to motivate and educate anyone affected by cancer.

LivingWell exists to provide compassionate care that empowers, encourages, supports, and offers hope to patients with cancer and their families.

MediFind uses the power of big data to connect patients with the right doctors and treatments faster. We are constantly analyzing every new piece of medical information for nearly every health condition from around the globe to identify what you need to make the most informed treatment decisions possible. Then we simplify that information so you can actually use it.

The NCI, a component of the National Institutes of Health, is the Nation’s principal agency for cancer research. Information specialists are available to help answer your cancer-related questions whether you are a patient, family member or friend, health care provider, or researcher. Our service is available in English and Spanish over the phone, by email, or through LiveHelp online chat

Survivor-led advocacy organization working to increase access to improved quality care through legislative and public policy change, patient empowerment and educational outreach initiatives.

NCCN is a not-for-profit alliance of 28 leading cancer centers devoted To patient care, research, and education. NCCN is dedicated to improving and facilitating quality, effective, efficient, and accessible cancer care so patients can live better lives.

The Half Fund is a mission dedicated to lifting the veil on cancer. It is a first-of-its-kind 501(c)(3) not-for-profit entity dedicated to spreading cancer education and awareness through the financing of commercially viable, mass media appeal projects. These may include films, books, television shows, or music, and will all help to educate people about the realities of a cancer diagnosis and the treatments that follow. 

The mission of the Prevent Cancer Foundation is to save lives across all populations through cancer prevention and early detection. The organization aims to reduce the cancer mortality rate by focusing individual behaviors, public policy, and research on prevention and early detection, address all preventable cancers across all populations, make prevention knowledge and early detection services more accessible for people in medically underserved communities, collaborate with partners to maximize the effectiveness and reach of the prevention and early detection programs and message, and create an energizing and productive workplace that people want to join.

The Taylor Matthews Foundation is dedicated to raising awareness and funding pediatric cancer research. We fund cutting-edge, innovative research that reaches sick children now. It is our mission that children with cancer will live long, healthy, and productive lives.

Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, materials, and resources.

A free, patient-friendly platform that helps you find and apply for clinical trials that match your disease profile.

Vital Options International is a global health foundation focused on supporting the financial needs of patients and giving patients a voice. Vital Options is also committed to giving a voice to patients, caregivers, families and healthcare professionals through our award-winning Vital Conversations and Advocacy In Action programs. This blend of patient stories and insights from healthcare professionals provides patients and their families valuable guidance to the treatment and support they need.

Learn about the research

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