A Breath of Fresh Air
Reading Time: 2 minutesBy: Madison Moury, 25, Carcinoid Tumor It all started off when I randomly had a hard time breathing back in August 2024. I went to my primary care doctor and
Tag: Rare cancer
Coexisting Realities: When “AYA” Meets “RPCV”
Reading Time: 4 minutesBy Jo Dunne, 26, Synovial Sarcoma Early last June, I celebrated Eid at the family home of a good friend. I remembered walking up to the doorstep and being greeted
Where Is My Brain?
Reading Time: < 1 minute Ophir, 31, GIST Ophir shared their story at the 2026 AYA Week Storytelling Open Mic Event in NYC. Ophir sheds light on her experience living with a rare cancer and the feeling of isolation that accompanies the journey. As an entrepreneur, CEO, and someone who
The Art of Acceptance
Reading Time: < 1 minute Quinn, 28, Liver Cancer Quinn shared their story at CancerCon 2026’s Storytelling Open Mic in Seattle. Quinn shares profound insight into his experience with grief after being diagnosed with
Life After Surgery
Reading Time: < 1 minute Julianne, 38, paraganglioma Julianne shared their story at CancerCon 2026’s Storytelling Open Mic in Seattle. Julianne describes her resilient story of navigating life and recovery after having life-changing open
Para Ganged Up On Me Oma! (Paraganglioma)
Reading Time: 3 minutesBy: Julianne Melvin, 38, Paraganglioma I woke up in a hospital room, the air thick with the smell of antiseptic and the rhythmic, mechanical hum of monitors. I tried to
My Ewing Sarcoma Journey
Reading Time: 3 minutesBy: Robert “Bear” Bloomquist, 23, Ewing Sarcoma On December 19th this year, my life changed in a way I never saw coming. That was the day I was diagnosed with
Bad Headaches= Brain Tumor
Reading Time: 3 minutesBy: Kyler Noah, 22, Brain tumor, Non-Hodgkin My story starts in July of 2025. It was a regular summer for me. I had just finished my third year of my
My Journey With Chordoma
Reading Time: 2 minutesBy: Ross Binder, 30, Chordoma My journey with chordoma started in 2014 when I was a senior in high school. One day after tennis practice, my back felt like it
A Covid Cancer Journey
Reading Time: 2 minutesBy: Alexander Haber, 34, Non Hodgkin Lymphoma The year was 2020. I was getting ready to take time off of work to just relax and go to places I hadn’t